May 14 - May 20, 2000

Sunday, May 14


Monday, May 15


Tuesday, May 16
We had an appointment with Dr. Peterson today, but we were feeling pretty full of ourselves after last week's good news. I didn't mind that Kendra (as we've come to call her) was double-booked and that a student intern was sent to do the interview. I don't remember much about this visit except that the intern asked a lot of questions about Don's history and his current state. When Don described his current symptoms - lack of balance, trouble with bowel control - he asked the doctor what might be causing them.

"Could be tumor," the young doc said. Obviously, bedside manner is an acquired skill. I much preferred Dr. Prados's "that's what I'm trying to find out."

Kendra was equally thrilled with the results of the lastest MRI. She, too, said we had "made her day."

We decided that, with the good news and the absence of any swelling, Don could start tapering of Decadron. We both saw this as good news. Neither of us liked the visible changes it was having on his appearance, and Don was more than a little upset that he was up to 160 pounds, the most he has ever weighed. We worked out a schedule that would have him off the Decadron by the time we went to Utah. I was glad of that, as the tamoxifen and etoposide schedules were difficult enough for him to remember. Removing one more medicine from the mix meant one less thing that could go wrong.

I was proved wrong about this, however. Removing Decadron from the list of medicines actually made one more thing go wrong - disasterously so, as it turned out, though we didn't find that out for a month.

Wednesday, May 17


Thursday, May 18


Friday, May 19


Saturday, May 20




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© 2000 Louis Flint Ceci / ceci@best.com